News


The Helping HANDS for Autism Act Introduced to the House (HR 6282)




By Carin Yavorcik


June 23, 2008

Bill provides for lifespan autism services and awareness
Members of the U.S. House of Representatives introduced a companion to the Helping HANDS for Autism Act this week.


The Helping HANDS for Autism Act (HR 6282) is a three-part legislative package designed to support families dealing with autism spectrum disorders, increase awareness among first responders and public safety officials and provide housing options and services for adults with autism. It was introduced by Reps. Kay Granger (R-TX), Jim McGovern (D-MA), Chris Smith (R-NJ), Mike Doyle (D-PA), Dan Burton (R-IN) and Ruben Hinojosa (D-TX). The bill is a companion to S 2950, introduced in the Senate last April.


An estimated 30 million people in the world have an autism spectrum disorder, 1.5 million in America alone. Every day in America, 60 families learn their child has autism. These families face challenges of care, support, education, financial hardship and medical and health care issues that make autism a national public health issue. Though there is no cure, autism is treatable and individuals with autism have tremendous potential. What the Bill Does:


1. Creates a grant program to provide "autism navigator" services to help families navigate the web of services and care they need. Navigators will help guide families to current health, education, housing and social services that are often available to individuals on the autism spectrum. Too often, families feel overwhelmed after diagnosis and often lost as to where to turn for help. The program will help connect families to important treatment options soon after diagnosis, help families identify education options, and help coordinate individuals' care and community support.


 2. Provides for the development, demonstration and dissemination of a standard curriculum for the training of first responders (police, fire departments, emergency medical technicians and other volunteers) in assisting individuals with autism and other cognitive behavioral disabilities. It provides grants to states and local governments to support training of first responders. People with developmental disabilities, including autism, have up to seven times more contact with law enforcement officers than others, according to an article in the F.B.I. Law Enforcement Bulletin in April 2001. That is why training is so important. Something as simple as first responders turning off flashing lights and sirens on a police car could make the difference between a peaceful or chaotic encounter.


 3. Creates a HUD task force comprised of appropriate national and state autism advocacy groups, community-based organizations and parents who are charged with developing a housing demonstration grant program for adults with autism. The goal of the grant program is to provide individualized housing and services to adults with autism spectrum disorders.


The Interactive Autism Network:
IAN




What is the Interactive Autism Network and How Can It Help Your Family?



IAN, the Interactive Autism Network was established in January 2006 at Kennedy Krieger Institute to facilitate research that will lead to advancements in the prevention, treatment, and cure of autism spectrum disorders.  Families of children with an ASD can share information in a secure online setting and become part of the nation’s largest online research effort.  The goal is to gather the nation’s largest collection of autism-related data that could lead to new discoveries about causes, diagnosis, treatments and possible cures.


The IAN Community is an online environment where everyone concerned with autism spectrum disorders can learn more about autism research. It will help you



  • Keep up with the latest research findings, news, and events
  • Understand the value of participating in autism research
  • Influence the direction of research

The IAN Community will bring families, friends, individuals with ASDs, together with researchers, therapists, educators, and other professionals in the autism field to better understand this complex disorder through research and collaboration, and to develop effective strategies that will improve the lives of people on the spectrum.


IAN Research  will enable parents and other family members to provide information about their child’s diagnosis, behavior, family, environment, and services received.  Parents report on their child’s progress over time. Researchers from different institutions throughout the country will work with this information to learn about the effect and interaction of factors such as genetics, environment, and treatment on the well being of children with autism spectrum disorders. 


IAN Research will match willing parents with appropriate local and national research projects. This partnership will solve one of the major difficulties that autism research projects face - recruiting enough participants.  Each year, many useful and innovative studies in the United States are not completed or are significantly delayed because researchers cannot find enough children who qualify and valuable opportunities to learn about autism are lost.


Learn more and visit the IAN Community at:


www.IANproject.org


Return Home Registry
Finding Lost Persons



The Irvine Police Department has announced an innovative program designed to better serve the community and assist police officers in locating lost or wandering persons when they are missing from their homes or caregivers. These include individuals with conditions such as dementia, developmental disabilities, autism, and other disorders. With the "Return Home Registry," Police officers will have the tools to help quickly identify, locate and return home individuals who are lost or confused. This voluntary program is available at no cost to participants, family members and caregivers. All information provided will remain confidential and only used by law enforcement personnel. For more information, please contact: Sergeant Troy Gielish Irvine Police Department (949) 724-7015 Ext. 460