Networking together, we are a vital resource for each other. Please share information you believe will help grandparents to improve their understanding of autism, interactions with grandchildren and enhance their family relationships.
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When grandchildren visit, designate a special area for them in which they can play with their favorite toys or work with their crafts. Mark the area with a sign, picture or symbol they will recognize and return to on future visits. Use the same signage technique to indicate where they should hang up their clothing, sit at the table for meals, etc.
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Teach life skills and have fun working together. Many children enjoy doing simple kitchen tasks and helping to prepare meals. Empty the dishwasher, peel boiled eggs, clean raw vegetables, bake muffins or squeeze oranges for healthy snacks.
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Prepare children for new experiences or family celebrations well in advance, by frequently describing the details of the upcoming event. It will relieve anxieties and the children will know what behavior is appropriate for the occasion. You may wish to give your grandchildren cameras and request that they take pictures at the event.
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Post photographs or pictures of local places to visit or shop on the refrigerator or on a piece of paper and ask grandchildren to choose where they would like to go. Prepare a day schedule using the pictures in sequential order so children can anticipate the timelines for activities.
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If you will be separated from your grandchildren for awhile, put your picture on the calendar dates when you will be reunited. The child can then anticipate when you will be together again.
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At large family gatherings, alert other family members that your grandchild may require extra help or vigilance. They can help to provide a safer environment for everyone.
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Ask grandchildren what they would like for birthday or other gifts ahead of time. Sometimes surprises are not well received.
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If you are dreading dining with family in upscale restaurants, reconsider and go to restaurants that do not require long waits or structured table behavior. Everyone will enjoy the experience more.
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When planning outings, always have an alternative plan of action in case the first plan is not possible.
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If your grandchild only wishes to go to one place repetitively, try taking him there first for a few minutes. He may be more receptive about visiting other places after that.
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If your grandchild is not the same sex as you, plan ahead to be near facilities with family style restrooms. This may avoid embarrassment for everyone.
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Call ahead to restaurants to place orders for food if you anticipate a long or difficult wait for meals to be served. This is also helpful if your grandchildren’s diets require substitutions or modifications.
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You can request a Disabled Person Placard from the California Department of Motor Vehicles to use when transporting your grandchild by car, if the child has impaired mobility and is at risk when walking to or from public parking areas. This is the procedure for filing an application:
- Complete and sign an Application for Disabled Person Placard or Plates (REG 195).
- Have a licensed physician, surgeon, physician's assistant, nurse practitioner, or a certified midwife sign the Doctor's Certification of Disability portion of the application.
- Mail the original application to the address on the form. You will receive your parking placard approximately two weeks after you submit the completed form
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- Show pictures of your destinations and talk about what you are going to do on your trip. If possible, make a picture book and count down the days on a calendar at least two weeks prior to leaving.
- Always inquire if theme parks have special passes or points of entry for children with special needs. Call in advance to a guest relations representative for this information.
- Prepare for loud noises by having earplugs or headphones to mute the sounds for children who have sensory issues, when visiting crowed venues.
- Practice and simulate what will occur at airport security points. Pack familiar toys like crayons, Legos, PlayDough, DVD for entertainment on board. Be sure to offer drinks, gum or hard candy especially if the child cannot tell you he is experiencing pain from pressure in his ears.
- Plan to stay one night in a local hotel or arrange for an overnight stay before attempting longer stays. Arrange for adjoining rooms and bring familiar bedding and/or blankets, if possible. Rooms at the end of a floor are typically quieter.
- Make sure that the child is wearing identification. You can pin it to the back of his shirt or attach it to his shoelaces if necessary. Include his name, diagnosis and your cell phone number. Be sure to have a recent photo of the child to show police in case he is lost.
- Plan activities that especially interest the child. Avoid meltdowns by limiting the number of things you do each day and allow for plenty of downtime.
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By Jennifer Krumins
Children with autism need help to cope with the Christmas season. Even high functioning individuals can find it all "too much." We need to look at Christmas from the perspective of a person with autism and provide the tools and strategies necessary so that each member of the family can enjoy the season!
1. I may not want to open all of my gifts on Christmas morning. It may take me all day! I may want to just play with the paper or with the first gift I opened. New toys can be hard to get used to. 2. Please don't insist that I hang out with all of the friends and relatives. I need a space to myself... a place for quiet. Find a place that I can do my favourite activity so that you can enjoy your visits with others. 3. I may not be as excited as you would think I should be for Christmas. To be honest, I find it all a little too much; so many people, many different smells, too much noise, changes routine and too busy for my liking. Be patient with me. 4. I may want to leave the party early.....I may not enjoy the festivities as much as everyone else. I may cry, scream, or become hard to handle if I cannot cope. I am not trying to misbehave. I need help. 5. Please use visuals to show me the plan. A calendar of the family activities, a checklist of the errands we will have to do, and a photo album of the people who will visit would really help me to cope with all of the transitions and people. I don't need fancy visuals...keep it simple.
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If grandparents are uneasy about taking responsibility for their grandchildren with autism in public places, they can offer to be responsible for their typical grandchildren. This enables the chilld's parents to focus all of their attention on the grandchild with special needs.
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When out in public with a grandchild who may behave unconventionally, you may find it helpful to wear a hat, t-shirt, button or other article that indicates you support an autism cause. This may help to eliminate critical comments from others who misinterpret the behavior and feel you can control the child's conduct.
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When you plan for holiday entertaining in your home, be kind to yourself. You may have to adapt your home, menu, schedule and family traditions in order to make a comfortable environment for your grandchild with autism. Think about how you can meet your family’s needs and set realistic expectations. Establish new traditions, forgive yourself if the holiday is not “perfect,” stick to your routine and be consistent. Afterwards, no one will remember what was on the table. They will remember who was at the table and how much they enjoyed being together.
- Prepare children with visual social stories ahead of time to help them anticipate the holiday activities. Write the schedule of activities so the child is aware of the sequence of events. Use drawings or cut out pictures for smaller children to help them understand what to expect. Discuss the schedule many times before the event.
- Reduce the child’s anxieties about being with unfamiliar relatives by sharing photographs on display in your home or videos of the people and homes where the holidays will be celebrated before the events.
- Consider attaching a camera to your computer and to out-of-town relatives’ computers so children can utilize the Internet (SKYPE) to develop relationships with family members who live long distances away
- If possible, plan to attend smaller parties that are easier for children. Do not overstay, it may cause problems for the child and others. You may want to drive in two cars so that one parent can leave early if the child is distressed. Put the needs of the child first.
- Bring a favorite quiet toy like a calculator or stuffed animal for the child. Headphones or earplugs may also be helpful to moderate noise and activity levels around the child.
- Teach your child not to touch things. Ask the party host to remove breakables from reach.
- Visit stores, Santa or holiday displays at times when they are not crowded. Consider enjoying Santa or the sites as a “drive by” experience first because that can be less threatening than actually going there. If possible, gradually increase the time you spend shopping together until the child becomes comfortable with the routine and environment. Be sure to give small rewards for good behavior like staying close to you.
- Introduce holiday foods months or weeks before during snack times. Watch cooking shows and prepare some of the special recipes together. If eating habits or special diets are a concern, eat before leaving home or bring special foods with you.
- Share "your strategy" with the family so they can be part of the support group. Plan family activities such as cookie decorating, Bingo, singing, sidewalk chalk play, bubbles, games or other activities where everyone, young and old, may participate together.
- Plan an alternative activity or a quiet place for the child who may seek respite time.
- Reward children who are especially inclusive of the child with autism.
GIFT GIVING TIPS
- Shop by catalog or online with children so they can help to select and anticipate what gifts they will receive.
- Consider giving gifts one at a time, before and after the holiday, when there is less noise, fewer distractions and more time for the child to focus on the toys and other presents.
- Children with autism do not typically like surprises: Wrap gifts in clear cellophane or place a picture of the gift from the catalog on the attached gift card. Avoid noisy or glitzy wrapping paper.
"PRICELESS" GIFT SUGGESTIONS FOR THE HOLIDAYS AND FOR ALL OCCASIONS
Volunteer your help or bring in treats to your grandchildren’s classrooms
Provide respite childcare so that parents can spend time together Help with housekeeping chores, i.e. laundry, cleaning, pet sitting
Take a grandchild to a regularly scheduled appointment or class
Entertain siblings to enable more time for child with parents
Freeze individual homemade meals for use when needed
Offer your home for a family holiday or birthday party
Invite grandchildren for sleepovers at your home
Take your grandchild to the library weekly
Offer to do carpools for a week or more
Arrange for a play date in your home
Take your grandchild on a picnic
GIFT SUGGESTIONS FOR ANY BUDGET
Host birthday parties at local sites or offer to rent inflatable equipment at home
Give an annual family membership to a favorite museum, acquarium, etc.
Certificates for manicures, pedicures, massages or other spa services
Coupons for restaurants, fast foods or meals delivered at home
Gift cards for hobby/craft stores or for classes or supplies
Sponsor a family day at the zoo or an amusement park
Gift cards for department, electronic or book stores.
Support school lunch costs for a month or more
Sponsor a needed service, activity or program
Music lessons or other enrichment classes
Movie tickets and money for refreshments
Tickets for plays, concerts, sports events
Fund a housekeeper for a day or more
Purchase health club memberships
Offer a sleepover at your home
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